Hey everybody, I’m Carter. I’m a 22 year old college student at East Carolina University. Mark and Megan have been kind enough to let me use their blogging page to post my experience with my recent J Pouch surgerysurgeries.
I’ll start by giving you a little bit of the background. I was diagnosed eight years ago when I was 14. I had pancolitis, meaning the entire colon is diseased. Over the next 6 years I would be on a number of different prescription drugs, however, nothing that would put the UC into remission. I was on steroids from day one, and high doses of it. I became steroid dependent. Once the disease seemed to be somewhat under control, I would try to taper off the ‘roids’ but always had the same effect a flair up.
Two years ago I moved and started seeing a new doctor. The first thing she wanted to do was to get me off the steroids. I started taking intravenous drugs through the hospital which seemed to be the fix for me. I was able to come completely off the steroids but it wasn’t long before I started having symptoms again. I tried a few other drugs and ended up in the hospital one more time last year. Finally my doctor had me meet with a surgeon at the end of April. I need to say that this year wasn’t the first time t michael kors uk he idea of surgery had come up. I think early on my doctors knew that surgery would probably be in my future, but we hadn’t exhausted all the medical possibilities. The next day after meeting with the surgeon I made the decision to go through with it and made an appointment.
I was on the schedule for May 22. The next three weeks went by relatively quickly. I tried to put the surgery in the back of my mind and focus on exams and work. That is very important for anyone who is facing surgery; try not to make things worse by worrying too much. Don’t get me wrong, I was nervous.
Part 1: The Colectomy J Pouch I went in the day before and had a colonoscopy. If you have UC you probably already know what these are like. The next day I had the operation which went really well. It lasted about 6.5 hours but luckily for me it seemed like no time at all. I woke up pretty sore but I wasn’t in excruciating pain. I did have a button I could push for a dose of mo michael kors uk rphine as often as every 10 minutes if I needed it. I also had the ileostomy which definitely took some getting used to. I didn’t, however, have colitis anymore. I was limited to clear liquids for the next two days, until my bowels woke up, then was put back on a regular diet but was told to “take it easy.” I did pretty well with that and was recovering nicely, so 5 days after the operation I was sent home.
adjusted pretty quickly. I was able to do pretty much everything I could before. I didn’t go back to work because lifting heavy objects is pretty much what I do all day (I work at Lowe’s) and I only had 6 weeks until I was going to have my takedown operation. Going out wasn’t an issues; I would just tuck the ostomy bag in my pants and my shirt would cover the top. I wasn’t very good about limiting what I ate although I never really had any problems with it. I was warned of food blockages but never had to experience one. The great thing about the bag was that there was no sense of urgency, whatsoever.
Part 2: The Takedown Operation Six weeks after my first operation (July 3) I was back in for the takedown. I went in the day before for a ‘pouchagram’ just to make sure there weren’t any leaks in the j pouch. Everything checked out okay so I was cleared for surgery. This operation didn’t last as long, only about 2 or 3 hours. The nice part about this one was there was no preparation for it I just couldn’t eat after mid night the night before.
Again, when I woke up from this operation I was sore but nothing too bad. I was given pain medications. The next evening my bowls started waking up. I was passing a little gas and eventually some stool. Two days after the operation I was given regular foods. It was all I could do not to eat everything they brought me, but I really didn’t want to overdo it right off the bat. I did really well with solid food and was sent home 3 full days after the surgery.
I realize a lot of this sounds very similar to what Mark went through, but I felt like it would be good to post my story anyhow. I believe for someone who is facing a similar situation it is really nice being able to hear several testimonies from many different people. I was in contact with a couple of people early on, however I didn’t find Mark Megan’s blog until after my first operation. I plan on using their advice and that of others, especially my doctor, and making a speedy recovery. Right now, I feel really good. I don’t have ulcerative colitis anymore, which is nice to be able to say.
Mark and Megan have given me access to this page on their blog so I will periodically post about my progressbut that’s all for now.
Today, July 9,has been only 6 days since my takedown. I was told I would be going to the restroom at least around 8 times a day at first. I would say I’ve been going at least 8 times/day but I expect that number will go down once the J Pouch stretches and I’m a little more used to it, even more so once I start experimenting with Imodium and fiber supplements. I have been getting the infamous ‘butt burn’ but I’ve been using Balmex Ointment and it has seemed to help. I described it to my brother as, “Imagine the spiciest hot wings you’ve ever eaten, and how your butt felt the next day. Now imagine just putting one of those hot wings directly up your ass.” I didn’t mention it before but being able to joke around with those who are close to you definitely helps cope with some of the worry and aggravation of UC. Anyhow, my stools have been firming up slightly so I imagine the frequency will go down over time. I will say, I’m not so sure I’ll be able to sacrifice some of the foods I love for a little less time on the potbut I’ll get back to you on that one.
Two weeks after takedown 7 16 08
Alright, so it been 2 weeks since my second surgery and theres not much new to tell. The only thing is my ostomy wound; it still oozing some pus. I was warned to look out for dark or bloody pus or anything thing that stinks, but this has been the average yellow white pus. My wound, otherwise looks pretty good; it doesn feel hot, and it not sore. I am going to call the doctor tomorrow just to make sure. I built up some confidence and gone out and done things with friends but nothing stenuous. Keep in mind, I said confidence cockiness; I not going to push my luck too much.
I like to throw this piece of info out there for anyone who might be a victim of the familiar in the back of thegas stations across the country across the world. You know what I talking about, the 5 cell, the dimly lit restroom with amulti coloredtoilet seat and a sink you know will only make your hands dirtier if you attempt to wash When I travel, I found that hotel lobby bathrooms are typically pretty clean. They are used so much less then gas station restrooms. If I can make it, I will always look for a hotel. As an added bonus there is usually a brochure holder by the front door and occasionally free newspapers at the front desk you prefer reading material.
I realize that in some situationstheres no time to be picky, but desperate times call for desperate measures, and believe me know. But thats another story to be told some other time. Plus, I straying away from this pages original intent.
Quick note called the doctor a couple days ago to ask about my ostomy wound. The nurse on duty said it was completely normal to still be seeing a little pus fr michael kors uk om the wound.
Ok, so it’s been just over 5 weeks since my takedown operation. I am doing great. I have no regrets and not one time have I thought this was the wrong decision. I returned to work last Friday August 1st, but with a 20lbs weight restriction. I have been lifting more than that; I lift with my legs and don’t really strain my stomach muscles so I feel like it’s ok. If you’re reading this mom, sorryI’m stubborn. I know I mentioned my issue with giving up certain foods in an earlier post, but I’m starting to figure out what foods WILL NOT work for me. One day last week, for lunch, I had some Buffalo Shakers from Arby’s; I paid for it later that evening. A few nights ago I ate a large pizza and was up several times during the night I think it might have been the pizza sauce. I’ve been able to drink alcohol. All I’ve really had is light beer and it’s not really bothered me. I don’t think I’ll totally give up my favorite foods; but I will definitely have to cut back. Maybe eat them when I don’t have any plans later on.
I have been taking fiber and Imodium and it seems to be helping. I’ve been going to the bathroom about 6 8 times a day; michael kors uk sometimes more depending on what I eat.
I’ve been going out with my friends, and like I said, I returned to work. My confidence is back and I don’t spend every moment I’m away from my apartment worrying about having to run to the bathroom. I do usually have to go at least once at work, but believe me, I ‘Gift Wrap’ that toilet seat. When I do feel the urge, it’s not sudden; I am able to hold it sometimes an hour or more.
My overall health is great. I’m not in shape because I’ve not started to exercise, but I’ll start back in a few weeks. I have put on a lot of weight since my surgery I was down to about 125lbs which was really low for me.
About my ostomy wound. There was a small spot that wasn’t healing up. When I went in for a follow up my doctor told me it was a little flesh sticking out; it was no big deal. He put something on it, which I guess, burnt it off it didn’t hurt. About a week later it was completely healed up. I’ll post some pictures later on. Thanks for reading and thanks for your comments and questions.
The most important thing to remember is to always keep a positive attitude. I realize it can be hard at times, but if you can have a good outlook on things it will make your experience with UC/J Pouch surgery that much easier.
I had open surgery. My scar goes from my belly button to my pubic bone. Up until recently I hadn heard about lapro surgery, which I assuming means minimally invasive?
Maintaining a positive attitude is one of the best things anybody can do for themselves. Don get me wrong, I had my moments, wondering why I 16, 18, 21, 22 or whatever and can control my bowels. A large part of a UC patients battle is overcoming the mental trials they go through. I was pretty determined not to let colitis ruin my life; but that meant there would be NO discrimination against public restrooms. I do recall more than one occasion when I would feel a slight urge to go, but would push my luck; those occasions could turn a good day horribly bad in a hurry. Accidents happen, but if you can put them behind you, pick your head up and go on with your life, lesson learned (if you feel the urge don ignore it), then your doing pretty good.
I glad you can get something out of this. I had trouble finding resources about the disease early on which was a little discouraging, so I glad I can contribute something. Look around and see whats out there and hear as many stories as you can.
There are a lot of options out there to try. There are lots of medications and treatments available. My doctors never said much about dieting; but I heard some people who have had some success with it. Talk with you doctors and learn as much as you can about whats available.
Just wanted to say congrads on the operation and great to see such a positive attitude IS A BIG HELP IN THE HEALING! I am glad M let you use the space here to post for others to read they are great ppl and ppl I have never met though consider family ( we all are after what we went through)
I had a jpouch for 6 months (about) before some major issues cause me to go to a end illeo. That being said I am a State Trooper and wear my 20 25 pounds of gear every day, play full check ice hockey, work out, eat what I want and swim almost every day. I think its great for others to see that there ARE a lot of options and the jpouch which I think has a rate of 95%+ of working isnt the last step. My life with the bag is better then I could have ever prayed for (I get between 5 7 days between changes and havent had a leak in over 1 year. knock on wood lol) and like to show others that if it goes to the BAG you still can live a normal life.